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Open Access Study protocol

Protocol: developing a conceptual framework of patient mediated knowledge translation, systematic review using a realist approach

Anna R Gagliardi1*, France Légaré2, Melissa C Brouwers3, Fiona Webster4, David Wiljer5, Elizabeth Badley6 and Sharon Straus7

Author Affiliations

1 Departments of Health Policy, Management and Evaluation, University of Toronto, Toronto, Canada

2 Department of Family Medicine, Université de Laval Centre Hospitalier, Universitaire de Québec, Québec, Canada

3 Department of Oncology; Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, Canada

4 Holland Orthopaedic & Arthritic Centre, Sunnybrook Health Sciences Centre, Toronto, Canada

5 Department of Radiation Oncology, University Health Network; Faculty of Medicine University of Toronto, Toronto, Canada

6 Department of Health Care and Outcomes Research and Epidemiology, University Health Network, Toronto, Canada

7 Departments of Medicine, University of Toronto, Toronto, Canada

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Implementation Science 2011, 6:25  doi:10.1186/1748-5908-6-25

Published: 22 March 2011

Abstract

Background

Patient involvement in healthcare represents the means by which to achieve a healthcare system that is responsive to patient needs and values. Characterization and evaluation of strategies for involving patients in their healthcare may benefit from a knowledge translation (KT) approach. The purpose of this knowledge synthesis is to develop a conceptual framework for patient-mediated KT interventions.

Methods

A preliminary conceptual framework for patient-mediated KT interventions was compiled to describe intended purpose, recipients, delivery context, intervention, and outcomes. A realist review will be conducted in consultation with stakeholders from the arthritis and cancer fields to explore how these interventions work, for whom, and in what contexts. To identify patient-mediated KT interventions in these fields, we will search MEDLINE, the Cochrane Library, and EMBASE from 1995 to 2010; scan references of all eligible studies; and examine five years of tables of contents for journals likely to publish quantitative or qualitative studies that focus on developing, implementing, or evaluating patient-mediated KT interventions. Screening and data collection will be performed independently by two individuals.

Conclusions

The conceptual framework of patient-mediated KT options and outcomes could be used by healthcare providers, managers, educationalists, patient advocates, and policy makers to guide program planning, service delivery, and quality improvement and by us and other researchers to evaluate existing interventions or develop new interventions. By raising awareness of options for involving patients in improving their own care, outcomes based on using a KT approach may lead to greater patient-centred care delivery and improved healthcare outcomes.